South Australia Clinical Cancer Registry (SACCR)
The South Australia Clinical Cancer Registry (SACCR) – is authorised under the Health Care Act 2008, and consists of four hospital-based clinical cancer registries and a central coordinating unit. The clinical registries provide information on cancer stage, grade, differentiation, treatments (surgery, radiotherapy chemotherapy etc,) prognostic indicators, patient outcomes and other key indicators of quality cancer care which are needed to complement population incidence registries. Cancer stage is crucial for audits of appropriate therapy and assessing screening. Data is limited to those who are treated at participating hospitals Flinders Medical Centre, The Queen Elizabeth Hospital, Lyell McEwin Health Service and the Royal Adelaide. Clinical Registries provide clinicians and service planners appropriate insight into current cancer trends and the impacts of changes to clinical practice and models of care on outcomes. There are over 300 data items potentially collected as defined by the South Australian minimum data set.
SA Clinical Cancer Registries were first introduced in major SA Public Hospitals in 1987 (retrospective data from 1982) to monitor practice and outcomes; support clinical research and provide data for clinical administration. Resulting data have been published widely in leading international journals, and used for a wide range of administrative purposes and service monitoring.
The clinical registries are managed by a Central Co-ordination Unit (CCU) which is funded through the Beat Cancer 2 project and housed by the UniSA School of Population Health based in SAHMRI. The unit performs quality assurance on the data, updates clinical and mortality information and prioritises the work of the staff in the hospital registries. Further to this the CCU responds to clinician requests and has provided the data for 8 recent publications.
Dianne Buranyi-Trevarton: Dianne.Buranyi-Trevarton@sa.gov.au
Kate Powell: firstname.lastname@example.org